SMA is a complex disorder that requires comprehensive
multidisciplinary medical care1
Effective management of SMA requires the participation of multiple disciplines and the coordination of many different aspects of care to manage the symptoms of the disease. Supportive care may include respiratory interventions, physical rehabilitation, nutritional intervention and orthopaedic support.1,2 With treatment now available for SMA, management of the disease is evolving.
Generally, a neurologist or paediatric neurologist should be in charge of coordinating assessment and appointments and monitoring disease progression.
The goal of palliative care is to improve quality of life and relieve stress and discomfort, and may have a role alongside active treatment.2
Experts discuss the evolving landscape of SMA care and the place of new treatments